Words Matter

This is my last week being 41 years old. If you had asked me even one year ago what I would be doing this year and into the next year of my life, I would not have guessed that I would be participating in a board that focuses on public policy and change-making in the disability community. It’s taken me a ton of time to get to where I am today, And now that I’m here, I hope God continues to bring me forward on this journey.

During today’s meeting, we were tasked with answering the question: What vocabulary needs to change In our community and society?

My answer was that we need to work on and eventually stop using the term able- bodied  to describe someone who does not have a disability. Instead, we need to start using the term non-disabled to describe someone who does not appear to have a disability. Furthermore, we need to be mindful of when, where, and how we use terminology because we might meet someone who has a hidden disability but is uncomfortable talking about it or identifying with the community. Lastly, the most important thing to remember is that anyone we meet who is disabled or not deserves to be called by their name, and that is it.
As I have said many times before, for half of my life, I tried to run away from my identity as a disabled woman because the way that questions and terminology made me feel was awful. I also believe that I fell into depression because I lost my best friend, Noel when I was 21 years old. She was 24, and when we talk that school, we talked about how we would change the world for the better for people with disabilities. I miss her every day, and I know that she is watching over me as I step into this God-given assignment and go forward in life.

My Confidence

How would you rate your confidence level?

In a perfect world, I  would say it’s perfect, but it varies from task to task. I tend to internalize the opinions of my loved ones instead of letting their words be their responsibility alone.

I need to start tracking my little wins in my journal on my phone because I know that even though. I struggle a whole lot not every thing is bad

It’s a good day

Today, I did one of my favorite things! I had a meeting with my @boundlessbabesociety sisters. I have been doing a lot of reflecting on what my attitude used to be like towards being disabled, and I cannot believe how much my life has changed in the past four years. I realize now that my community is my superpower! I’m so happy that God is growing it so much, more than I could ever imagine💚

A Day of Advocacy

Me this Morning

Today was a great day! I spent the day reconnecting with colleagues from a self-advocacy group I was a part of last August. It was amazing to be in the same room with all of them. It feels fantastic to be involved in advocacy again! It was a piece of myself that I’d run away from for a very long time.

I look forward to more opportunities like this.